Both boys are DX with L1-Syndrome, Hydrocephalus, Strabismus, Non-Verbal, Developmentally Delayed

Meet two of the coolest brothers around, Braylon and Carson. Both boys are medically complex individuals and diagnosed with L1-syndrome. L1 is a rare, neurological disorder only found in boys. They are developmentally delayed, non-verbal, utilize wheelchairs and have both endured countless surgeries and therapies. Their medical history is pretty extensive. Starting from day one, when they were each 24 hours old, both Braylon and Carson needed a shunt placed due to having hydrocephalus. Despite their medical emergencies and hardships, these boys are the true definition of perseverance. 

Braylon and Carson have personalities like no other! They love life, being around people, new adventures, high fives, LSU Baseball and enjoy being in the moment. The boys’ mother states that, “one of the biggest things my boys have taught me is that a disability doesn’t define them .. it’s a part of them. They want to be treated as any other kid, and being around neuro-typical kids encourages them. We don’t say no to any opportunity - you never know where it may lead or who you might meet.” 

Both boys participate in Miracle League NOLA, have been snow skiing, participate in the Special Olympics, and even attend a sleep-away camp for special needs kids (Med Camp of Louisiana). As a parent, their mother says that she “knows how quickly our world can change … I want them to experience the fun while we can.” The boys’ family built an all-accessible park in their hometown and advocates daily for those with special needs. 

Though these brothers were born years apart, they share an incredible bond with each other and are a true blessing to all who meet them.